Amy McGuire, Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at the Baylor College of Medicine, provides a cautionary framework for genomic sequencing that takes into account its personal, social and policy consequences.
“I think a lot of the ethical and policy issues in genomics are not only about how we will look at ourselves, but also about how others will view us and treat us.” — Amy McGuire
Lawyer and bioethicist Amy McGuire researches the ethical and policy issues in human genetics, with a particular focus on genomic research and the clinical integration of emerging technologies. She is currently studying issues related to genomic data sharing and the return of research results, ethical issues in human microbiome research, the policy implications of emerging business models for next generation sequencing, and ethical and policy issues arising in the clinical integration of genomic technologies. Amy is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine in Houston. She is married to a physician scientist and is the proud mother of three boys.
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Genome sequencing – is it for everyone? Q&A with Amy McGuire
The indispensable role of professional judgment in genomic medicine.
McGuire AL, et al. JAMA (2013), 14, 1465–6.
To share or not to share: a randomized trial of consent for data sharing in genome research.
McGuire AL, et al. Genet Med (2011), 11, 948–55.
Disclosure of APOE genotype for risk of Alzheimer's disease.
Green RC, et al. N Engl J Med. 2009 Jul 16;361(3):245-54
Effect of direct-to-consumer genomewide profiling to assess disease risk.
Bloss CS, et al. N Engl J Med. 2011 Feb 10;364(6):524-34.